I had a full day Combat Hapkido Seminar (6 hours worth) and was actually able to sustain. I felt unlimited in most ways. It's amazing. When I am doing that I do not feel the disease called MS (minus the bladder most of the times, this is the most annoying part).
But bladder aside, I learn to compensate and take measures to help that out including catheterizing beforehand and NOT depriving myself of water or fluids. I need them ... and I sweat a lot ... so NOT drinking is not an option.
Great day. Even when the doctor found it hard to believe that I was doing martial arts with my TSH level at 41 ... I find a way to do it. The human spirit is pretty strong when it needs to be.
Cool stuff!!!
Showing posts with label bladder issues. Show all posts
Showing posts with label bladder issues. Show all posts
Saturday, March 15, 2008
Thursday, February 21, 2008
Slept Very Well but Dopey ....
Yesterday CC and I were going to start Combat HapKiDo classes ... but she has a head cold and we wanted the first class to be together. So, next week on Tuesday we will start. After that, we've agreed that we can take extra classes apart if we want to. We just wanted the first one to be together.
My psych nurse has given me a very low dose of Valium (Diazapam) right before bed to help me work into a regular sleep rhythm and help with some muscle tension and TMJ. I took a 5 mg. tablet right before bed (I am experimenting) and slept very solid. But I woke up a little too dopey for my taste. I will try it at 2.5 and see if I get the same dose. The logic is, if this can replace Buspar ... that would be great. I've also not had a night sweat in over a week so that is definitely playing into my ability to sleep through the night. This morning though, despite coffee, I am a bit too dopey for my own taste.
Experiment!
It's a beautiful crisp day and I will try to get out for a walk or something. Gorgeous.
My bladder seems to have calmed down too. I think I am back on track for the moment.
7:00 p.m - I've had a good day but have EXTREMELY sore knees (both of them) at the moment. Could be thyroid?? I am just a few days off from getting my blood levels checked since my thyroid surgery.
The really good thing is ... I slept really solid last night and my mood was a LOT better for it. :)
My psych nurse has given me a very low dose of Valium (Diazapam) right before bed to help me work into a regular sleep rhythm and help with some muscle tension and TMJ. I took a 5 mg. tablet right before bed (I am experimenting) and slept very solid. But I woke up a little too dopey for my taste. I will try it at 2.5 and see if I get the same dose. The logic is, if this can replace Buspar ... that would be great. I've also not had a night sweat in over a week so that is definitely playing into my ability to sleep through the night. This morning though, despite coffee, I am a bit too dopey for my own taste.
Experiment!
It's a beautiful crisp day and I will try to get out for a walk or something. Gorgeous.
My bladder seems to have calmed down too. I think I am back on track for the moment.
7:00 p.m - I've had a good day but have EXTREMELY sore knees (both of them) at the moment. Could be thyroid?? I am just a few days off from getting my blood levels checked since my thyroid surgery.
The really good thing is ... I slept really solid last night and my mood was a LOT better for it. :)
Sunday, January 27, 2008
Up Way Too Early ...
It's crazy. Sometimes I feel like a vampire.
One of my kitties woke me up at 3:30 a.m. Since that time I have been out on my couch working on some of my Build a Niche Stores and various blogs. I feel perfectly awake but was just short of making a cup of coffee since I will probably grab my pillow and make my way to the pub couch to watch a rerun of something like "Dr. 90210" to put me to sleep.
I don't know about you, but I have not had regular sleep for the past 18 months or so. I don't feel like I have the need for excessive sleep and sometimes I am awoken with bladder issues even when I have faithfully cathed myself. Intermittent catheterization is my lifeline. I guess I need to be mindful of my liquid intake in the evenings and stop at a certain time.
Anyway, I am going to try to venture back to sleep.
11:00 a.m - I managed to get several hours of sleep after spending about an hour online working on some of my eBay niches. I feel refreshed and ready to go now.
Today we have another birthday celebration to attend -- this time it's my Mom (I really love my Mom, she's always been so supportive and has grown to be a wonderful friend). An early dinner. I'm really looking forward to the Super Bowl next week :-) And soon enough -- baseball season (go Boston Red Sox!!)
9:25 p.m. - I have survived the day and still feel a little energized. CC and I did a little shopping in the mall (to buy some birthday gifts) and I was able to survive very well in my MBT's. No knee pain! No leg fatigue. I felt like I could have gone on for a long time. I am amazed at those little shoes!!
One of my kitties woke me up at 3:30 a.m. Since that time I have been out on my couch working on some of my Build a Niche Stores and various blogs. I feel perfectly awake but was just short of making a cup of coffee since I will probably grab my pillow and make my way to the pub couch to watch a rerun of something like "Dr. 90210" to put me to sleep.
I don't know about you, but I have not had regular sleep for the past 18 months or so. I don't feel like I have the need for excessive sleep and sometimes I am awoken with bladder issues even when I have faithfully cathed myself. Intermittent catheterization is my lifeline. I guess I need to be mindful of my liquid intake in the evenings and stop at a certain time.
Anyway, I am going to try to venture back to sleep.
11:00 a.m - I managed to get several hours of sleep after spending about an hour online working on some of my eBay niches. I feel refreshed and ready to go now.
Today we have another birthday celebration to attend -- this time it's my Mom (I really love my Mom, she's always been so supportive and has grown to be a wonderful friend). An early dinner. I'm really looking forward to the Super Bowl next week :-) And soon enough -- baseball season (go Boston Red Sox!!)
9:25 p.m. - I have survived the day and still feel a little energized. CC and I did a little shopping in the mall (to buy some birthday gifts) and I was able to survive very well in my MBT's. No knee pain! No leg fatigue. I felt like I could have gone on for a long time. I am amazed at those little shoes!!
Wednesday, July 11, 2007
Housework ...
I am going to try to get some housework in today. The weather looks crappy and it looks like rain.
We're trying to get motivated to clean and put a new rug down that we bought. We may have to venture out to run some errands (like get a rug pad). Allergies are hitting me pretty strong this morning but I am trying to resist taking a "Baby Benedryl" since these make fighting fatigue twice as hard. I have not taken Provigil since last week since I am a little gun shy after all that nausea. Weaning off of the Lyrica has helped a bit and I've lost a couple of pounds that I put on. Still not exactly where I want to be. Topamax is on it's way.
In the MS world, I know I have to take advantage of these early hours where my energy is more available. We are working on getting up fully.
5:03 p.m - we've been in the midst of torrential thunderstorms. I hope the pool doesn't flood! Lots of lightening, etc. I saw a little chipmunk in the pool trying to swim to safety and ran right out and rescued him. Creatures big and small warm my heart and I could not bear it even though I looked like a wet rat. I was glad I was able to save him -- it's something that my Mom and Grandmother would have done. I picked that trait up from them. My heart goes out to helpless creatures. I'm happy to say that he appeared to be saved (but really wet and probably cold). I got him out of the pool with a net and stuck around long enough to watch him scurry. He was ok. I haven't been in rain that hard in a long time!
The storm appears to be passing. We never got out to do any errands. Want to know the sad truth and one of the reasons this disease can be so humbling? I was doing a few household chores, overheated and got incontinent (without really sensing it). It's tough to be 41 and plagued by that. I try to live as normal as I can but stuff like that reminds me that I have to account for some limitations (darn). Lesson learned (again): cath before I begin anything that will heat me up even the slightest. An empty bladder is better for everyone. Oh well.
Also got a call from the VA regarding my colonoscopy next Wednesday and found out that they are going to use general anesthesia on me (yay). Sorry, but for that -- I have no desire to be awake. Anesthesia is amazing. That's all I have to say.
We're trying to get motivated to clean and put a new rug down that we bought. We may have to venture out to run some errands (like get a rug pad). Allergies are hitting me pretty strong this morning but I am trying to resist taking a "Baby Benedryl" since these make fighting fatigue twice as hard. I have not taken Provigil since last week since I am a little gun shy after all that nausea. Weaning off of the Lyrica has helped a bit and I've lost a couple of pounds that I put on. Still not exactly where I want to be. Topamax is on it's way.
In the MS world, I know I have to take advantage of these early hours where my energy is more available. We are working on getting up fully.
5:03 p.m - we've been in the midst of torrential thunderstorms. I hope the pool doesn't flood! Lots of lightening, etc. I saw a little chipmunk in the pool trying to swim to safety and ran right out and rescued him. Creatures big and small warm my heart and I could not bear it even though I looked like a wet rat. I was glad I was able to save him -- it's something that my Mom and Grandmother would have done. I picked that trait up from them. My heart goes out to helpless creatures. I'm happy to say that he appeared to be saved (but really wet and probably cold). I got him out of the pool with a net and stuck around long enough to watch him scurry. He was ok. I haven't been in rain that hard in a long time!
The storm appears to be passing. We never got out to do any errands. Want to know the sad truth and one of the reasons this disease can be so humbling? I was doing a few household chores, overheated and got incontinent (without really sensing it). It's tough to be 41 and plagued by that. I try to live as normal as I can but stuff like that reminds me that I have to account for some limitations (darn). Lesson learned (again): cath before I begin anything that will heat me up even the slightest. An empty bladder is better for everyone. Oh well.
Also got a call from the VA regarding my colonoscopy next Wednesday and found out that they are going to use general anesthesia on me (yay). Sorry, but for that -- I have no desire to be awake. Anesthesia is amazing. That's all I have to say.
Tuesday, June 5, 2007
New Morning ... waking up, feeling good
This morning I woke up to ship an eBay order and some Coca tea that was purchased off of my Chicgeeks eCrater Store. It's pretty cool that people can find that one and the Bolivian Teas website and order the stuff. I just ordered 20 more boxes of the Lupi Coca Tea from Bolivia. I thought that the other brand, Windsor, would be more popular -- but Lupi seems to win.
I am finding the tea invaluable for my MS symptoms. It helps with tummy issues and is also assisting me with fatigue which is such a huge thing as you will read throughout this blog.
I never speak much about my bladder issues even though they are a predominant and steady part of the way I experience MS. Basically, I catheterize and if it is hot out I tend to have a lot less control and more little leaking / accidents. The best way to control that is to stay cool, combat fatigue the best way I can, wear my Oxytrol patch and a small pad and ALWAYS have a spare catheter handy. It's a foolproof plan for me and it works.
Some people who read this blog may think that I am complaining or focusing a lot on MS symptoms. I feel that this is the space to share them and share about the disease. The disease can sometimes rule my day via fatigue, pain or other strange sensations. That's the way it is.
Here's to a very good day (it's slightly cooler out). It's great to be alive! It's a good day to work on The Secret with CC and prepare for our trip to Vegas (hoo ahh). How exciting!!! I'm making sure to bring my cane (not even a question in my mind about that).
I am finding the tea invaluable for my MS symptoms. It helps with tummy issues and is also assisting me with fatigue which is such a huge thing as you will read throughout this blog.
I never speak much about my bladder issues even though they are a predominant and steady part of the way I experience MS. Basically, I catheterize and if it is hot out I tend to have a lot less control and more little leaking / accidents. The best way to control that is to stay cool, combat fatigue the best way I can, wear my Oxytrol patch and a small pad and ALWAYS have a spare catheter handy. It's a foolproof plan for me and it works.
Some people who read this blog may think that I am complaining or focusing a lot on MS symptoms. I feel that this is the space to share them and share about the disease. The disease can sometimes rule my day via fatigue, pain or other strange sensations. That's the way it is.
Here's to a very good day (it's slightly cooler out). It's great to be alive! It's a good day to work on The Secret with CC and prepare for our trip to Vegas (hoo ahh). How exciting!!! I'm making sure to bring my cane (not even a question in my mind about that).
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